You Can Help
FOP Researchers are tantalisingly close to major breakthroughs in treatment and even a possible cure. If you donate to FOP Friends you are the difference between research continuing and it stopping completely.
Research requires financial support
Research into FOP in the UK receives no NHS or government funding. The FOP research team at the University of Oxford, led by Professor Alex Bullock, is funded solely by FOP Friends. Without funding from FOP Friends, the research team would not be able to continue in its current form.
Research into rare disease such as FOP helps scientists understand more common medical conditions, which could in turn advance the treatment for other diseases. Your support for FOP Friends could further understanding of osteoporosis, atherosclerosis, joint replacements, heart disease, heterotopic ossification following military injuries or surgery, chronic anaemia, sporting injuries, and burns.
The team at Oxford are also working with cancer researchers into the connection between FOP and the childhood brain cancer DIPG.
Read more about Professor Alex and his work here: http://www.ox.ac.uk/news-and-events/find-an-expert/dr-alex-bullock
We need to keep funding the research and everyone can help!
FOP Friends is a small charity. All the projects we carry out are grant-funded with a massive 96% of fundraised money going directly to supporting the research and projects which we hope will find us that treatment and cure for FOP.
Without the support of generous people, we will not be able to continue our work. Your donation is the difference between research continuing and it stopping completely.
All donations to FOP Friends are gratefully received, there is no donation too small.
We have a Virgin Money Giving page, through which we can easily claim Gift Aid, adding an extra 25% to your contribution at no extra cost to you.
You can also set-up monthly donations of any size. For large donations or other ways to donate to FOP Friends, please visit our Donate page or contact us.
All our families who are affected by FOP, thank you.

Fundraising Ideas
- CHALLENGE yourself
- ORGANISE an event
- LEAVE a gift in your will
- SELL using eBay for charity
- JOIN our community
- Don′t Send Me a Card
Run, swim, climb, cycle, wade, walk, dance, knit, sing or Zumba! Do whatever you love (or hate) and get sponsorship from your friends and family. Please let us know what you’ve been up too.
Host a dinner, bake a cake, organise a pub quiz night, a Swap 4 FOP or a charity golf day. You can be as creative as you like. We will help you publicise it and get coverage for any sponsors you have. For more information please visit our Fundraising page where you will also find details of FOP Friends organised events and advice. Are you crafty? Love to bake, make or build? Why not raffle, auction or sell the result of your efforts in aid of FOP Friends. Or if you’d rather not do it yourself, donate it to us and we’ll do the raffling or auctioning for you.
When people think of leaving a legacy in their will, they often think of wealthy philanthropists. But even a small amount will benefit a small charity like ours enormously. When you’re making or revising your will, please consider leaving a gift to help us find a cure for FOP.
Did you know that when you sell on eBay, you can choose to donate anything from 10% to 100% of the final sale price to your chosen charity? You can also Gift Aid your donation. Just use the ‘Advanced Sell’ form when you’re listing a new item and you’ll see the option to donate. Visit www.charity.ebay.co.uk to find out more.
The more of us there are, the greater our influence and our potential to succeed in finding a cure for FOP. Like us on Facebook and follow us on Twitter, Instagram, and Pinterest. Share what we’re doing with your friends and colleagues, and encourage them to spread the word.
This not only gives us extra funds, it also saves you lots and lots of time. And there’s no stamp licking required either. For the cost of a donation to FOP Friends you can design and send your own E-cards for all occasions (birthdays, Christmas, Easter, and Valentine’s Day) through the DontSendMeACard.com. How much you donate is entirely up to you.